Headliner of the fourth festival "Rare Heat"

Headliner of the fourth festival "Rare Heat"



The goal of the social fest is to form a modern, effective public opinion (opinion) about "rare" diseases and "rare" people:
not expensive - but advanced, not orphan - but next to everyone.
Focus-goals of the Fourth Social Fest "Rare Heat" -
increase the level of social approval of the most important decision of the current year - the formation of the Circle of Kindness Foundation

  • to raise the level of public and state attention to the unresolved problems of "rare" adults
  • to increase the authority of orphan medicine and the authority of "rare" doctors (formation of the "Club of rare doctors", presentation of the Sign of Public Recognition #ЖМУРУКУ)
  • analysis of "mirror" studies "The system of healthcare organization for" rare "patients through the eyes of the medical community" and "The system of healthcare organization through the eyes of" rare "patients.

Social fest objectives:

  • In a creative form, spread knowledge of who the "rare" patients are, acquaint the public with individual orphan nosologies
  • Form an idea that the "rare" next to each of us
  • On the presented stories of patients from Astrakhan and other regions of the country and their families, demonstrate the results of modern pathogenetic treatment, thereby uniting society in a tolerant attitude towards "rare" patients and high-cost state attention to them
  • On behalf of leading experts in the field of orphan medicine, introduce the following idea into the public consciousness: where they know how to find and treat "rare" diseases, they effectively cope with common diseases

Participants of the social fest: "rare" patients and "rare" doctors from federal centers and regions of the country, politicians and healthcare organizers, public figures, musical groups of Astrakhan and Moscow (on a charitable basis), journalists from federal and regional media, Astrakhan residents and guests from other regions ...
July 10, 2021.
The fourth social fest "Rare Heat with the participation of" rare "doctors and" rare "patients, government officials, public figures, musical groups of Astrakhan.
The headliner of the social fest is Yulia Samoilova, a participant in the Eurovision Song Contest.
The venue is the Volga River embankment, the area near the Petrovsky Fountain.
The beginning of the broadcast online - at 18.00 Moscow time on the website